Below are some useful links about Organizations on Spina Bifida:
See also:| Association for Spina Bifida and Hydrocephalus - UK website containing a large selection of informational articles and provides information about current research projects being funded. |
| Australian Spina Bifida and Hydrocephalus Association - National organization acting as the peak body for information and support. Provides opportunity to email questions to an expert, fact sheets and contact information. |
| International Federation for Spina Bifida and Hydrocephalus - World-wide umbrella organisation. Aims to disseminate information and expertise throughout the world to families, individuals, professionals and volunteers. |
| The Scottish Spina Bifida Association - Contact information for national office, family support services and fundraising. |
| Spina Bifida and Hydrocephalus Association of Canada - Information, current news, research grants and discussion forum. National organization. |
| Spina Bifida and Hydrocephalus Association of Ontario - Offers support and research into the causes and treatment. Includes FAQ, Medical Information, details of events and research programs. |
| Spina Bifida Association of America - Voluntary health agency dedicated to education, advocacy, research and service. Has a presence in more than 125 communities nationwide. |
| Spina Bifida Association of Kentucky - Educates, supports those affected, and strives to prevent this birth defect. Includes programs and member activities, a calendar of events, volunteer opportunities, a newsletter and membership information. Located in Louisville. |
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